What exactly is Sundowner’s Syndrome and is my loved one experiencing symptoms? Here are some ways you can help them manage it.Ask for Care
As the sun slowly sets, you notice your father’s mood start to change. He’s seeming increasingly confused. You can sense he’s feeling a bit overwhelmed but you’re not sure quite why. You listen in on a phone conversation from his old friend and can tell it is difficult for him to track all the details of the discussion. After he hangs up, he looks in his drawer where he keeps his spare change. He tells you he thinks some money is missing. You try to tell him that you’re absolutely sure it’s all there but he quickly becomes agitated and is convinced someone stole it. As the skies begin to grow darker you notice he is becoming more and more disoriented. He begins pacing up and down the hallway and tells you he is going to go for a drive. You offer to accompany him on his evening errands but he stubbornly refuses your offer and says he’s just fine on his own.
This behavior is extremely out of character for your dad and you wonder how his mood seems to have changed so dramatically since this morning. You feel upset and wish there was something you could do to alleviate his anxiety. This isn’t the first time you’ve observed these changes happening throughout the day and they seem to be worse as soon as the sun goes down.
What you may be observing in your loved one’s behavior has become known in everyday vernacular as Sundowner’s Syndrome. As the name suggests, it’s a condition that causes symptoms such as confusion and agitation after “sundown” in people who suffer from Alzheimer’s disease.
It is believed that Sundowner’s Syndrome is caused by hormonal imbalances that occur in the evenings. Others theorise that the onset of symptoms in the evening hours is due to simple fatigue.
While Sundowner’s Syndrome has yet to be perfectly diagnosed and continues to remain somewhat of a mystery to those experiencing it and caregivers navigating it, we can equip ourselves with knowledge and medication to help alleviate and reduce its effects.
Sundowner’s Syndrome symptoms often reveal themselves more intensely as the day progresses. Your Mum/Dad may experience increased confusion, disorientation, wandering, and escape behaviors. At times, anxiety, paranoia, fear, and hallucinations may also occur.
According to Sundowner Facts.com, here’s a closer look at some things you can look out for to determine if your loved one may be suffering from Sundowner’s Syndrome:
1 Wandering: A person ‘sundowning’ might get disoriented and confused about where they are. He or she might wander in an effort to get centered again. Often times an individual might decide randomly to go for a drive in the evening and then might not remember their name or address. This is why it’s important to remain vigilant to Sundowner’s symptoms and ensure the proper round-the-clock is being provided.
2 Anxiety: Someone with Sundowner’s Syndrome may exhibit anxiety but be unable to articulate the reason for their feelings. This can then lead to frustration and disagreeableness.
3 Suspiciousness: Often times an individual appears to have a temporary personality change when the sun goes down. He or she may become suspicious and accusatory of family and friends.
4 Frustration: Agitation, frustration and at times extreme stubbornness are also common with the on-set of Sundowner’s Syndrome. They might not be receptive to helpful suggestions or steps to take care of them.
5 Inability to follow directions: When the sun starts to go down some people with Sundowner’s become confused and cannot process information as fluidly as they can during the daylight hours. This confusion can also lead to frustration and agitation.
In addition to ensuring your loved one gets the proper in-home care, there are some additional steps you can take to support your loved one who may be experiencing Sundowner’s Syndrome.
Similar to other forms of dementia, the effects of Alzheimer’s, including the mysterious ways of Sundowner’s Syndrome, can cause anxiety for a loved one’s family as well. Not knowing precisely how to navigate it can also feel debilitating and like you’re sailing a ship without a rudder. This is why it’s helpful to educate yourself as much as possible as well as talking with our Care Team to better understand the most helpful approach you can take.
Nurse Next Door’s caregivers specialise in Alzheimer’s and dementia care. See how they can help Mum or Dad live happily, comfortably and safely at home here.
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The Caring Journal is full of informative resources and client stories. With a focus on the positive side of ageing, we hope our blog inspires you to embrace our Happier Ageing philosophy of care that will help you to remain in your own home, on your own terms, because there really is no place like home.
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